What do I want to write about....

What do I want to write about? Hmmm....

Yesterday was really a decent day! Praise God! There were times of the day where I felt half normal, whatever that is! Yes, I did get up for the remainder of the day at my usual 3 pm, but I needed to get to A-town to get 5 of my prescriptions because I was going to be out today.

My friend, Chandra, was going to town, anyway, so I asked her if I could tag along and stop by the pharmacy to get them. If you haven't been around me, you wouldn't know that just to shower, put clothes on and a ride in the car, even just to pick up one thing, would totally exhaust me. Yesterday I was able to do it, and I felt pretty good. This was the first day like that in a very very long time. In fact, it's been so long that I can't even remember when.

Does that mean that every day from this point on is going to be like that? No, most probably not, but I do cherish and treasure the good days and try to fully enjoy them. I do have to make sure that I don't overdo it, though, because then I will crash and be physically down and in pain for days or weeks. I do hope it's not so long for the next good day like that to happen.

Today is OK. The pain is there, but not horrendous. When you have dealt with it this long, it just becomes part of your life. My chest does feel like someone is giving me a bear hug. My help tonight, Ginger, called and one of her friends really needed her help with something tonight so she wondered if I could get by without her. I told her I would try. I am feeding the twins stuff for dinner that aren't too messy, so hopefully they can forgo their baths. Here, I will show you why they usually need a bath after supper every night. This was taken after one of those times where I got their supper, then had to disappear into the bathroom for a few minutes (everyone has to go sometimes :o)
Do you like how it makes her eyebrows appear to come to a V in the middle of her forehead?

My oldest is supposed to be cleaning her room, getting her jammies on and washing her hands so she can eat supper. It's just the kids and I for supper, so I just feed the kids and eat whatever, whenever. I usually don't eat until the kids are in bed when it's just me. It's just easier that way. On the nights I have help, I can usually eat the same time as the kids.

Fred works nights, so he is sleeping, and even on his odd nights off, he is not up in time for supper, so then we eat after the kids go to bed.

It's pretty gloomy looking outside. I can't wait for the grass to green up. I think when it is consistently warmer, things are blooming and having some nice sunny days will really perk us all up. I look forward to the times where we can go outside after nap time and play. I am hoping to get one of those pools with the inflatable rings that stay up when you put water in them that have the filter. I do think it would give us something to do after nap time to get us all outside, get some fresh air and let the kids have fun. The water will be good for me, as when I am in deeper water it takes the weight of the world off my aching body, so then I don't hurt as bad. I would LOVE a hot tub, and really think it would benefit me the most, but funds keep us from being able to get one. If I could sit in that every night before bed, I am sure I would be able to sleep much better and more comfortably, then be able to do a little more in the daytime.

All I know is that God has always supplied all of our needs. If I really would benefit from these things, then they will be provided, someway, somehow.

signing off for today and trying to dance.....Me